With an uncommon grace, he, his wife Amy and their family endure impending tragedy daily. Charles Lee Anderson, their 19-month old son, is mentally and physically deteriorating from a rare and terminal genetic disease called Tay-Sachs. Already blind, mostly paralyzed and increasingly unresponsive, the insertion of life support machinery could conceivably keep Charles alive until the age of five.

Amy and Bryce have instead made the heartbreaking decision to spare him the inevitable degradation and suffering by allowing their son to die naturally. In the ever-shortening meanwhile they struggle to fill his life with the utmost love and attention, in effect substituting quantity for quality.

Nineteen-month-old Charles Lee Anderson appears to gaze upwards while riding in the back seat of his family’s pickup. Charles is blind, virtually paralyzed and becoming increasingly unresponsive as his Tay-Sachs disease progresses and further destroys his nervous system. There is no cure and the diagnosis is terminal in all cases.